Coming June 10, 2017: Lippy Legs & All – My Life with Lipedema

Scheduled for June 10, 2017 release.
You can pre-order your copy from the publisher here:
https://www.smashwords.com/books/view/710509
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For years, I watched as my calves legs grew larger, bruised easily, and became more painful. Even bumping against a chair or the corner of a wall would send shockwaves of pain through my calves and leave me with huge bluish-purple bruises.

I knew something was wrong, but what could it be? I thought it was a simple case of edema or general swelling, but keeping my legs elevated and taking diuretic pills had no effect. In fact, they only became worse.

In 2014, after several attempts to locate a physician who would help me figure out what was wrong, I was lucky enough to get a diagnosis. I had Lipedema, a genetic disease I’d never heard of before. It’s a mystery disease with no known cure thus far.

Not widely discussed, Lipedema is rare and only affects about 11% of women. Few doctors are able to recognize the symptoms, nor have they been exposed to information about the condition and how it relates to the all-important lymphatic system.

LIPPY LEGS & ALL is the story of my life (thus far) with Lipedema. I’ll discuss, in detail, what I’ve learned about the disease, how it’s permanently changed me both physically and mentally, and why I’m determined to bring awareness to this condition so women who may suffer from Lipedema can get the essential diagnosis and treatment they deserve.

Without a proper diagnosis, treatment, and rehabilitation, a Lipedema sufferer can face a bleak future of wheelchair-bound immobility or, worse yet, amputation of their limbs. No woman deserves either of those things; if I can cast a wider spotlight on Lipedema through the publication of this book, I will.

Cover_NEW_Lippy Legs & All

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Therapy update

Meant to post this before now, but lotsa stuff going on. Visit with my physical therapist for Manual Lymph Drainage (MLD) went well. Overall, my lower limbs are down in size and she’s pleased with how compliant I am with following her recommendations. She hasn’t measured me yet for my permanent compression stockings, though. I thought it would be this week, but she wants to wait another week or two.

I want to recognize my beloved husband for going with me, faithfully, to every appointment and being there in the room when everything takes place. I couldn’t ask for a more supportive husband! I’m still bummed that what I have is not curable, but my therapist and my husband keep me positive. He reminds me that I’m beautiful and that my condition hasn’t diminished his love for me one bit.

So, I have two visits per week, on average, and my therapist has 24 years of experience treating patients with lipedema & lymphedema. I’m in good hands — literally! A couple of things I have to watch out for the rest of my life: one, I can’t do hot tubs anymore (not that I did them a lot, but still); two, I have to be careful when I travel by plane due to the effect it can have on my calves, ankles, and feet. It’s also recommended that I use electric shaver instead of razors to shave, since cuts, punctures, scratches all spell bad news in a limb with lipedema/lyphedema. In the scheme of things, it’s a day-by-day situation.

A friend of mine asked if there isn’t a medication I can take to help. The answer is no. There is no medication that can help, and diuretics, diet, or exercise cannot cure my conditions. The cause is unknown, and lipedema is classified as a rare disease.

Anyway, just an update because Thursday’s visit was a good one. I think she said my lower legs were down an inch in some areas, which is fabulous. Too bad they won’t stay there permanently, but as long as they’re not going up and heading to the next stage, I consider it a victory. I do NOT want to end up in Stages 3 or 4.