Coming June 10, 2017: Lippy Legs & All – My Life with Lipedema

Scheduled for June 10, 2017 release.
You can pre-order your copy from the publisher here:
https://www.smashwords.com/books/view/710509
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For years, I watched as my calves legs grew larger, bruised easily, and became more painful. Even bumping against a chair or the corner of a wall would send shockwaves of pain through my calves and leave me with huge bluish-purple bruises.

I knew something was wrong, but what could it be? I thought it was a simple case of edema or general swelling, but keeping my legs elevated and taking diuretic pills had no effect. In fact, they only became worse.

In 2014, after several attempts to locate a physician who would help me figure out what was wrong, I was lucky enough to get a diagnosis. I had Lipedema, a genetic disease I’d never heard of before. It’s a mystery disease with no known cure thus far.

Not widely discussed, Lipedema is rare and only affects about 11% of women. Few doctors are able to recognize the symptoms, nor have they been exposed to information about the condition and how it relates to the all-important lymphatic system.

LIPPY LEGS & ALL is the story of my life (thus far) with Lipedema. I’ll discuss, in detail, what I’ve learned about the disease, how it’s permanently changed me both physically and mentally, and why I’m determined to bring awareness to this condition so women who may suffer from Lipedema can get the essential diagnosis and treatment they deserve.

Without a proper diagnosis, treatment, and rehabilitation, a Lipedema sufferer can face a bleak future of wheelchair-bound immobility or, worse yet, amputation of their limbs. No woman deserves either of those things; if I can cast a wider spotlight on Lipedema through the publication of this book, I will.

Cover_NEW_Lippy Legs & All

And the beat goes on…

Saw a new doc today. Really liked her. She’s gonna try and sort me out. I’ve rarely had to visit the doc throughout my life, at least compared to most people.

Blood pressure was good at 118/78. She upped my Celexa to 40mg for my anxiety/depressive disorder, too.

The unexpected development was that she may be referring me to a neurologist for a nerve conduction because I may have either carpal tunnel syndrome OR arthritis in my hands/wrists. As a writer/editor, this is NOT welcome news—but I suspected it because of pain I have developed. However, NOTHING will EVER stop me from writing or editing…even pain. I’ll take meds, wear wrist braces, or whatever. I will NOT allow my body to keep me from doing what I love!

As if those things weren’t enough, I definitely have chronic asthma/bronchitis (which is why I cough a lot), so I have a new prescription for an inhaler.

Finally, tomorrow I have to have a series of blood tests and a metabolic profile done to test my current thyroid levels, including TSH/T3/T4 for hypothyroidism (subclinical or full-blown) or to see if it’s something else that’s wreaking all sorts of havoc with my body.

Whew! All these decades of bragging about not having to go to the doctor often, and now at 49 I get hit all at once. Geez!

And how was YOUR day?!

Finally — my journey toward a hypothyroidism diagnosis

Well, well, well…it seems I may have found the right person to consult for hypothyroidism treatment. The general practitioner who didn’t seem to give a whit about it in fall of last year and dismissed my concerns WAS wrong and it turns out I SHOULD be on medication. I have EVERY single one of the symptoms of hypothyroidism. I *knew* there was something wrong all along. Pays to do research and ask questions. Just goes to show YOU know your body better than strangers do.
I’m anxious to get started on the journey to wellness. For all those well-meaning (?) people who gave me shit about never being able to lose enough weight in my life (to make THEM feel better about themselves, I suppose), you can SUCK it. Turns out there was a REASON why I could never reach *your* Holy Grail of perfection. My body was working against me!
I remember being 135 lbs when I was a teenager and being told I was still too fat, and then having a lecture about everything on my plate. It was humiliating.
There was also a time when a friend decided to bring up the subject one day at an eating establishment and started loudly discussing it, flat-out putting me on the spot. I was mortified and my husband was furious. We couldn’t believe someone could lack that much tact. Great that YOU weigh 115, but I don’t and haven’t for a long time. And guess what? There was a reason. I never forgot that moment, either.
Am I sensitive over this issue? Yes, I am. Because I get pissed when people ASSUME things about you, your body, and your life without knowing what they’re talking about.
The only people who get to say anything about my big boobs, big ass, or extra padding is ME or my husband — and my husband LIKES women who have more padding, thanks very much.
Anyway, just a rant here. My advice is to keep your mouth shut in such circumstances. A lot of women — and some men — have a hard time doing that, unfortunately.
Sorry this turned into a vent, but it’s been a long time coming. And yes, I feel better now that I’ve gotten it off my chest.
My worth comes from what’s INSIDE me, and not how attractive or unattractive YOU think I am. Take a good look at yourself in the mirror. You may be pretty or handsome on the outside, but you also have work to do on the inside just like the rest of us.
If you have issues with me or this post, you can privately message me with your concerns. Comments will be moderated and rude or snarky ones will be deleted without a reply.